Best Patient Support Tool
Haemophilia A is a rare blood disease that stops the blood from clotting, which can lead to major internal bleeding, particularly in joints, across the body. Haemophilia mainly affects males and, because they are born with it and have to make compromises to avoid having bleeds, they get used to growing up not living their life to the full.
Young men with haemophilia often struggle to talk about how it affects their lives – things like their sex lives, managing pain, and their mental health. Consequently, many rely on humour to broach these awkward subjects online and share how they’re really feeling.
Based on this insight, we developed and launched the ReDefine Haemophilia website with the #MEMEOPHILIA challenge – a bespoke ‘meme generator’ that gave patients the tools to generate and share their own memes to express themselves.
Muscles from Brussels
A three-part series, all about exercising correctly and safely in the gym with Haemophilia, hosted by Sébastien Lobet, a physiotherapist and researcher at the Cliniques Universitaires Saint-Luc in Brussels who specialises in haemophilia.
Travelling with Haemophilia
Our series, ‘Traveling with Haemophilia’, is now boarding. Featuring your captain, Luke Pembroke, here to give you some tips and advice based on his experiences to make sure your trip has as little turbulence as possible.
In this series, Luke corrects common misconceptions about traveling with haemophilia. Luke has severe haemophilia but hasn’t let that get in the way of seeing the world and having fun. From Zanzibar to the Galapagos Islands, Luke is a seasoned traveller, and proof that having haemophilia doesn’t mean you can’t get out there and see the world.